The question that never goes away
WhathappenstomychildwhenI'mgone?
It's the thought that wakes you at 3 AM. The fear you carry in every doctor's appointment, every school meeting, every quiet moment. Will she be loved the way I love her? Will he be safe? Will anyone know that he needs his blanket folded a certain way, or that she gets scared when it rains?
You tell yourself you'll get to the trust paperwork. You'll write the Letter of Intent eventually. You'll figure out guardianship. But the days keep passing, and the weight of everything else — the therapies, the IEPs, the daily battles — pushes the future planning to "someday."
The reality: A University of Illinois study found that fewer than half of special needs parents have any plan for their child's future care. More than 1 in 10 have taken none of the 11 critical planning steps. Without a plan, adults with disabilities are significantly more likely to be placed in institutional settings when a parent dies.
First Light exists so that "someday" becomes today.



